7 Things You Won’t Learn About POTS From WebMD

POTS causes my blood pressure to drop when I stand, resulting in passing out and scaring anyone unprepared to witness it. Patients with POTS are also commonly diagnosed with small fiber neuropathy and experience extreme fatigue, lightheadedness, fainting, shaking, headaches, heart palpitations, exercise intolerance, nausea, diminished concentration, coldness or pain in the extremities, chest pain and shortness of breath.

But back in 2008, Pots were just things my family cooked with and no doctors could figure out what was wrong with me. It took two and a half years and twenty-five doctors until one incredible cardiologist turned to me and said, “I know what you have.” I went straight to the internet. However, there have been so many things over the past ten years that websites like WebMD could never have prepared me for. Here are some of them.

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I’m Going to the FDA’s Alopecia Areata Meeting in DC!

This FDA meeting gives us with alopecia areata a chance to tell the people who approve drugs and medical devices that we need more research into treatments for AA. I’ll be flying out to Washington, D.C. in a couple weeks. Have you heard of an FDA PFDD meeting before?

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Eyebrow Steroid Injections for Alopecia Areata

Getting steroid injections in your eyebrows? Piece of cake. Actually, I could feel the needle tug as he pierced, breaking the tiny veins running throughout. A mixture of corticosteroids was injected. My dermatologist looked at my head and said ‘wow, you really did lose a lot of it on that trip, didn’t you?’

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Alopecia Areata and Airport Security

I mean, I actually had not paid attention to people’s reactions to my alopecia areata before. Because it happened face-to-face at an airport security checkpoint with people all around me, it was a bit jarring. Here’s what the TSA agent did.

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Facebook Finds Alopecia Areata Ugly

As if I needed an internet service to repeat back to me what society dispenses daily. Facebook, the epitome of social media, where millions are members, where the platform shapes your business and your life, found my photo too ugly to advertise.

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Chemo Hasn’t Killed My Kidneys, and Cancer Can’t Steal My Emotions

Round 3 of chemo should have started yesterday. But blood tests came back and some stuff with my kidneys were still too high to start. In the afternoon, I went to the kidney specialist (very unprepared). In good news, I’m NOT having pain from the cancerous lymph nodes, but I am having body pain from the car accident.

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Facial Hair Loss from Testicular Cancer Treatment

I’m currently at the halfway point of treatment for my testicular cancer. I have seen a difference in hair loss and skin color. I am planning a big shaving reveal. I’m doing everything I can to hold my head up high and overcome everything that has been thrown my way. I knew cancer treatment was expensive, but did not expect the bill collectors so soon. You probably will not guess what triggered the calls.

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The Reality of Hair Loss from Chemo

While at the cancer treatment center, they were trying to control my WBC and problems with my bone marrow caused great pain. I could barely walk. So I was hospitalized again. While I was there, they tried more ways to control the Afib that won’t go away. Before I went home, it finally happened – hair loss.

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