Oh my God, as if I needed something ELSE on my plate. A few days ago, I started losing eyesight in my right eye. Like I was blind in that eye. Then it was followed by a headache, and within the hour my eyesight was back. We did WebMD (not a good idea folks) and it came up with Ocular Migraines. Well it happened again the next day, and then the day after.
So my husband decided to call my doctor who referred us to an opthamologist in case it was a detached retina, a clot, glaucoma, whatever. He spent FOREVER looking at my eyes. He put in yellow dye that made me look like the Nightcrawler from X-Men. (That was kind of cool). In the end he said my eyes were perfectly fine and normal. So he went to talk to the doctor on call to see what we should do, and he said we should go to the ER. As you know, I’ve been to the ER SO MANY times, that I was just like, “really?”
So we went up to Urgent Care to talk to a doctor to see what they would do at the ER, and she was very nice about it. She did a neurological exam on me, and didn’t see any signs of a TIA or stroke. She explained that they were probably worried about a clot in the carotid artery, but the chances were slim. She didn’t say we had to go to the ER, but she also didn’t say we shouldn’t. So we decided to go home that night, and if it happened again, we’d go.
Well, it happened again the next day. Except for one big difference. I was completely blind in both eyes. I’m deaf. That is the most terrifying experience I have ever had in my life.
I’m not really that spiritual, but I prayed so hard and asked God to help me. That I couldn’t take anymore on my plate. To please give me my eyesight back. I wanted to cry, it was so terrifying.
Fortunately, it came back within an hour. They did a CT scan to make sure it wasn’t a blockage, and everything’s fine. So the final diagnosis is an Ocular Migraine. I’m taking Gabapentin, off label. My neurologist says there’s been studies that it helps prevent the Ocular Migraines from happening.
But that hour was the worse. I was scared. What if I couldn’t see anymore? I wouldn’t be able to read lips. I wouldn’t be able to draw or play the piano anymore. My life would be completely upside down. To never see my husband’s face ever again, my family… and if I had kids… so many things ran through my mind in that hour.
I had never been so grateful as I was in the moment that it came back and I could see. I thanked God for providing me good neurologists and doctors to help figure out what was going on. And like I said, I am not a spiritual person. But that hour definitely changed me.
This post first appeared at PNES & Me, our partner site.